Should people with autism and very high needs have a separate diagnosis? Takeaways from AP’s report

A growing movement advocates for a new diagnosis, "profound autism," to better support individuals with autism who require constant, lifelong care. This push stems from concerns that the broad autism spectrum disorder diagnosis doesn't adequately address the specific needs of those with significant intellectual disabilities and limited verbal communication. Advocates argue that a separate diagnosis would improve access to appropriate treatments, support services, and research tailored to this population. While autism rates have risen, increased awareness and a wider diagnostic criteria have shifted focus away from individuals with the most intensive needs. Researchers estimate that about a quarter of those with autism meet the criteria for "profound autism," a term introduced in 2021. Some worry that creating a separate diagnosis of profound autism will further divide the autism community.

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